It's about today. Nine years ago right now, Christmas was the last thing on my mind. Nine years ago right now I was sitting in a very hard chair, leaning against a glass box, and whispering please to my brand-new baby boy, telling him to breathe. Just breathe one more time honey, and Mummy will be happy. One more second together with him, was all I wanted in the world.
He gave me that second, again and again, in spite of everything the doctors told us. If you're familiar with Apgar scores in which a newborn's condition is scored between 0 (stillborn) and 10, our son's was recorded as "1". The priest came within the first hour, and squeezed my hand while he prayed. We only spent a week in the NICU, but to me it felt like years.
You know how memories are: some are so sharp and clear that you can remember what you were wearing, the smell of the room, the way the light fell across everything in that moment. That's how clearly I can remember the doctor saying goodbye to us as he let our son come home for Christmas, telling us over and over again the odds our son had overcome:
"It's as if he'd been held against a wall for a firing squad, who stood at point-blank range and reloaded, and somehow every one of them missed." He shook his head and called him a "true Christmas miracle", this boy who hadn't had a chance: the doctor had pulled a blank death certificate from his files after seeing him off to the NICU. He'd thought it was only a matter of time.
Nine years of time, today. He still doesn't know why I cry every time I sing Happy Birthday; he can't remember those awful days we thought he'd never have even one.
It was a different doctor who diagnosed him with autism a few years later, and when she said, “You’re taking this very well,” my husband and I looked at each other and laughed. Lady (I wanted to say) he lived to see this diagnosis... and really all that matters are the first two words of that.
He’s always been full of miracles, this kid, one after another. When he was three or four, I watched him play with his Brio trains and told him: “Your Grandaddy would have loved to play trains with you. He had a real one.” A slight stretch of truth: my father didn’t own a locomotive, but for years he was the caretaker of one he loved, and it might have well have been his, for it was retired to a museum after my father’s death.
“I know,” my son said, though he couldn’t have known; I’d never mentioned such a thing before. “but his was green.” He wasn’t looking at me as he said that, which was just as well as my hair must have been standing on end. That old locomotive was green.
I asked my husband when he came home, if he’d ever mentioned my father’s engine to our son. He didn’t know what I was talking about: my father had died years before we met, and my husband didn’t even know about the trains. Son was still playing with trains while the Tweenies sang to him from the television, so my husband pulled me into the kitchen and whispered, What was the number of the engine?
“Fifty,” I whispered back, and we went back into the sitting room.
We sat down to join in the train playing, and Himself asked Son what number was on his Grandaddy’s train. I had no fear of him getting it right: the child could only count to eight at the time, and to twelve with help. But Son sat back, and after a long, long moment of that wide-eyed inward gaze we were so used to, he said, “Five.” It was as close as anyone with a vocabulary of 1-8 could possibly get.
The gifts from this child never end, but perhaps the biggest one is my lately-acquired gift of Belief. Since having him, I believe in miracles, I believe that they can even happen for me, and I believe in prayer. I believe in Christmas magic. I believe that one moment of joy can light your world with sunshine forever, even when common sense tells you that your life is in a pit. I believe in guardian angels and life that reaches beyond our experience or understanding or imagination.
I also believe, that I should be downstairs playing trains this minute, instead of writing this. But first I’m reminded of a few good links:
The Christmas Miracles Book is still taking submissions of true stories until the 24th of December, for publication next year.
Chicken Soup for the Soul is always looking for holiday stories; complete details of upcoming titles and what they’re looking for are on the website.
Anthology News and Reviews always has great markets, and this link will take you to news of a new magazine called Familymaker.
Boomer Baby Bliss is a wonderful blog, with this story that gave me the courage to even begin this post (you’re right, B, it IS hard!)
Moo-Dog and Radge. Just because.




30 comments: join in!:
Another beautiful post Susan! I love being reminded of why I read you.
A Christmas miracle indeed, in a time when miracles don't seem very miraculous in regards to all our technology. I yearn for a simpler time, I think I was born in the wrong century.
You, your son, and all your brood are truly blessed. Thanks for sharing a bit of that magic with us.
I'm covered from head to toe with chillbumps....
Your son is so adorable. Your story made my hair stand up, too. It is surely a miracle. Your father must be watching over him and all of you.
As someone sitting at the moment and hoping, praying, for a miracle, that was a great thing to read Susan.
Actually, great under any circumstances...
I don't know which is more beautiful; the story, the boy or the mother who shared. Wow!
And just as I was sitting in a pool of self pity over crap I can change if only I'll strengthen my backbone and take a chance...what a nice way to be reminded that miracles do occur, at the most unexpected moments! Thank you.
I'd say your Dad is whispering in Son's ear....his very own personal Guardian Angel.
Happy birthday cute little fellow. :)
The thing about miracles is that they don't *always* happen - I guess they wouldn't be miracles if they did. Let's just thank God it did this time.
No, really. Thank God.
Ashley, I get that wrong-century feeling too--I'm addicted to historical fiction, as if I *pretend* hard enough, I might get there!
B, I get those a lot with this child. Once on a visit to his Granny in Belfast, my husband asked who he was visiting, and he said, "Granny and Aunt M--- and E--". We said, "No honey, just Granny, Aunt M--- lives in Dublin." He kept insisting, so we dropped it. We forgot about it a few miles later, arrived at Granny's, tea and toast was passed around, and the phone rang. "Well that's lucky you're here," Granny said. "M--- and E--- are on their way, should be here in half an hour."
I couldn't hold onto my cup anymore, and my husband looked at our son and said, "He's got the shinning." At ever wedding and family party since, one cousin hands him a pencil and paper and says, "Six numbers, son, give me six numbers." We laugh, but who knows... He's got something.
Kay, thanks! (I think so too)
Radge, maybe then it was for you. He seems to work that way.
Hi Hope! I like to think so---my Dad and my son were made for each other, two 'motorheads', and they even stand the same way with their hands in their pockets LOL. They would have been such a perfect pair, and I like to think somehow they *are*.
Ken, amen. We all do ask for all sorts of miracles, even for things that just (sadly) aren't meant to be. This one changed my whole life, faith, and way of seeing the world; maybe that's part of its working?
Wow, what a wonderful, moving story.
Oh Susan .. you must be filled with pride. I wish I had a belief in such things then I'm blessed despite my moaning. Happy birthday to your little miracle!
What an incredibly beautiful post and story! I too believe in miracles as I was told when in my twenties that I would never be able to carry a child full term if by some miracle I even managed to get pregnant. Well, I did get pregnant, I did carry not just one but four children full term and they have been the light of my life, my miracles for 43 years now.
Thank you for sharing your lovely miracle and give him a big hug for me. Merry Christmas, Susan, to you and your family.
Thanks, Linda and Baino!
Thanks too, Sylvia: I can't help but wonder if the joy of having your children was made even brighter by the despair of having heard that they'd never be? Then, times four, wow! Life's unexpected gifts, and our own hope for them, are the best things in the world.
Susan, you're breaking my heart with every post these days.
Happy, happy birthday, little man. May every year be filled with as much love as comes surging out of your Mummy's wonderful writing xxx
Hey, fellow Cavan Lady!
I know, I know---I get very emotional this week before Christmas, it's terrible. Not a good time be watching the old Christmas films with me! LOL
I think I never recognized the magnitude of the month of December for you until now, really. Some friend I've been...I'm quite grateful you're easy to find now.
Beautiful, beautiful, beautiful! Wow. Happy birthday to that miracle boy whose soul stretches beyond this world!
Elizabeth, I'll say it to the whole world if I could: you're the best friend I've ever had. You've certainly stuck with me longest! LOL
Thanks, Sandy! I love the way you put it---as I so often do when reading what you write!
Susan, that's such a beautiful story. It's reaffirmed my belief in miracles, and I'm glad your dad is part of your son's memory too. A very, very Happy Birth-Day to both of you xxxxxxxxxx
Your story reads like a love poem, Susan. Lucky you and lucky little boy to be so loved. Gifts come in packages of many kinds.
It gave me goosebumps to read about the train. How he knew that is a true mystery.
And like you, I believe. In miracles, the power of prayer and the power of love.
Wow! What a beautiful post. Your writing is a real gift and such a story!
My freind's son is autistic and at first he was not sure how to comunicate with his son but then his son became friends with a horse called Betsy and this inspired my friend to take his son on a journey to the horse shamans of Mongolia! His son is nearly 7 now and has ways of handling this frightening world. They made a film about it all and the link is www.squidoo.com/horseboymovie and Rupert Issacson(the Dad) has just written a book to be published in march. Wondered if it would be of interest?
Much love to you and your wonderful son
T x
Thanks, Hayley and Granny Sue!
Chimera, that's a splendid Christmas gift you've given me right there: I can't watch videos on this dial-up connection, but I've written a note to myself to pick up the book: it sounds fascinating! Our son takes horseriding lessons with the local Special Olympics folks, and I hope to see him on the team eventually. He loves it.
Thank you for sharing your little miracle with us.
Lovely boy, lovely story, lovely piece to read.
x
I wanted to email you something but can't find an email address.
If you'd like to see what it is email me your address to author@crowd-pleasers.net
x
Sure wasn't he born lucky anyway, having you for his Mum?
There must be something in the air with all this heart rending going on!
You're welcome, Mannanan!
Rachel, thank you for the loveliest e-mail I've gotten in ages.
Terence, thank you for a few tears (the good kind).
You are are very blessed to have each other. Thank you for sharing your wonderful story.
Connie
www.celebratingmystory.com
What an incredible and inspiring story!
Is this the same son with the gluten intolerance?
My first thought about your comment regarding Starbucks was: How can such a place exist? And I started arranging a mental list of other places, outside of the home, that I've found are safe to eat at... but then I realized where you were and why you didn't have a starbucks and the rest of my list became equally useless.
My husband and I travel a lot and it can be very difficult to find food on the run when you can't have gluten. I don't know if these options are available to you or not, but we tend to lean towards sushi and Thai restaurants because they have the most gluten free options and also a much lower chance of cross contamination. We also eat at smaller restaurants where our ingredients issues will be taken seriously and special requests can be made to the chef.
Yes, he is! We live in such a remote area that it's difficult to find specialty foods are Asian restaurants (which we love when we find them), but I'll definitely take your advice on looking for the smaller places, and explaining our situation: something that for some reason we just hadn't tried.
On the flip side of that, McDonald's is the only restaurant we've found who are so transparent about their ingredients they post them and print them in leaflets: that's helpful. And, Disneyland offers gluten-free alternatives, though they're not particularly appetising for kids (in fact the chicken choice looks like dog barf, but...)
It seems we have to go very big or very small in our choices! Or of course, pack a picnic, and that's cheaper anyhow.
After all that's said---it's been good to find you! LOL
Oh my! You really touched my heart with this post. I have a son with Asperger's Syndrome. The amazing love and miraculous "aura" of him still gets to me (and he's a teen!). Love this. The only problem I'm having with your blog is that I can't stop reading and it is well past midnight here in the Midwest U.S. A good problem to have, in my opinion!
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